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Tidsskriftspublikasjon

• Person-centred care in congenital heart disease: Intercountry variation in patient-reported experiences across 32 countries

  2025:

  Birgitte Lykkeberg,

  Anne Vinggaard Christensen,

  Selina Kikkenborg Berg,

  Signe Holm Larsen,

  Liesbet Van Bulck,

  Eva Goossens,

  Adrienne H. Kovacs,

  Koen Luyckx,

  Laila Akbar Ladak,

  Mohamed Leye,

  Alexander Van De Bruaene,

  Ming Chern Leong,

  Anna Kaneva,

  Fernando Amaral,

  John Jairo Araujo,

  Navaneetha Sasikumar,

  Harald Gabriel,

  Dejuma Yadeta Goshu,

  Jou Kou Wang,

  Junko Enomoto,

  Maria Emília Areias,

  Diamantis Kosmidis,

  Louise Coats,

  Anne Marie Valente,

  Ju Ryoung Moon,

  Magalie Ladouceur,

  Corina Thomet,

  Jamie L. Jackson,

  Camilla Sandberg,

  Edward Callus,

  Yuli Y. Kim,

  Luis Alday,

  Charlene Bredy,

  Arwa Saidi,

  Fernando Baraona Reyes,

  Samuel Menahem,

  Michèle de Hosson,

  Joanna Hlebowicz,

  Christina Christersson,

  Ali Zaidi,

  Bengt Johansson,

  Brith Andresen,

  Jean Claude Ambassa,

  Zacharias Mandalenakis,

  Andrew Constantine,

  Pascal Amedro,

  Joost P. Van Melle,

  Ari Cedars,

  Lucia Ortiz,

  Fatma Demir,

  Paul Khairy,

  Jonathan Windram,

  Judith Bouchardy,

  Maryanne Caruana,

  Susan M. Jameson,

  Vaikom S. Mahadevan,

  Lidija B. McGrath,

  Julius Chacha Mwita,

  Philip Moons,

  the APPROACH-IS II consortium, on behalf of the International Society for Adults Congenital Heart Disease (ISACHD)
• Perceived health, psychological distress and quality of life in 8415 adults with congenital heart disease from 32 countries

  2025:

  Philip Moons,

  Adrienne H Kovacs,

  Eva Goossens,

  Koen Luyckx,

  Laila Ladak,

  Mohamed Leye,

  Alexander Van De Bruaene,

  Ming Chern Leong,

  Anna Kaneva,

  Paulo Henrique Manso,

  John Jairo Araujo,

  Navaneetha Sasikumar,

  Harald Gabriel,

  Dejuma Yadeta,

  Jou-Kou Wang,

  Junko Enomoto,

  Maria Emilia Areias,

  Diamantis Kosmidis,

  Louise Coats,

  Anne Marie Valente,

  Ju Ryoung Moon,

  Magalie Ladouceur,

  Corina Thomet,

  Jamie L Jackson,

  Camilla Sandberg,

  Edward Callus,

  Yuli Y Kim,

  Birgitte Lykkeberg,

  Luis Alday,

  Charlène Bredy,

  Arwa Saidi,

  Fernando Baraona Reyes,

  Samuel Menahem,

  Michèle De Hosson,

  Joanna Hlebowicz,

  Christina Christersson,

  Ali N Zaidi,

  Bengt Johansson,

  Brith Andresen,

  Jean-Claude Ambassa,

  Eva Mattsson,

  Andrew Constantine,

  Pascal Amedro,

  Joost P Van Melle,

  Shelby Kutty,

  Lucia Ortiz,

  Fatma Demir,

  Paul Khairy,

  Jonathan Windram,

  Judith Bouchardy,

  Maryanne Caruana,

  Susan M Jameson,

  Vaikom S Mahadevan,

  Lidija B Mcgrath,

  Julius Chacha Mwita,

  Liesbet Van Bulck,

  Navaneetha Sasikumar,

  Junko Enomoto,

  Yoshiko Mizuno,

  Ming Chern Leong,

  Izzatun Nafsi Bintosabran,

  Laila Akbar Ladak,

  Babar Hasan,

  Ayat Siddiqui,

  Ju Ryoung Moon,

  June Huh,

  Hsiao-Ling Yang,

  Jou-Kou Wang,

  Chun-Wei Lu,

  Fatma Demir,

  Tuğba Öden,

  Endale Tefera,

  Julius Mwita,

  Jean-Claude Ambassa,

  Charles Mvondo,

  Marcel Fanka,

  Dejuma Yadeta,

  Mulualem Alemayehu,

  Mohamed Leye,

  Khadija Gueye,

  Harald Gabriel,

  Matthias Svhneider,

  Selina Seeliger,

  Werner Budts,

  Alexander Van Debruaene,

  Philip Moons,

  Eva Goossens,

  Jessica Rassart,

  Koen Luyckx,

  Michele De Hosson,

  Julie De Backer,

  Anna Kaneva,

  Mila Markova,

  Miriam Biyai,

  Magalie Ladouceur,

  Anissa Boubrit,

  Jean-BenoÎt Thambo,

  Amandine Ruissel,

  Cecile Jore,

  Pascal Amedro,

  Hamouda Abassi,

  Sonia Soltani,

  Charlene Bredy,

  George Giannakoulas,

  Diamantis Kosmidis,

  Despina Ntiloudi,

  Edward Callus,

  Silvana Pagliuca,

  Enrico Giuseppe Bertoldo,

  Valentina Fiolo,

  Maryanne Caruana,

  Justine Swain,

  Neil Grech,

  Rachel Xuereb,

  Sarah Craus,

  Maria Bonello,

  Darren Borg,

  Paul Farrugia,

  Joanne Cardona,

  Mette-Elise Estensen,

  Asbjørg Katrine Eriksen,

  Maria Emília Areias,

  Joana Miranda,

  José Carlos Areias,

  Cristina Cruz,

  Filipe Macedo,

  Filipa Manuela Ribeironunes,

  Ana Maria Barbosadebessa,

  Sara Mafalda Espíritosanto,

  Paula Brito,

  Marisa Pereira,

  Sofia Teixeira,

  Brenda Marques,

  Ana Raquel Marques,

  Bengt Johansson,

  Camilla Sandberg,

  Helena Cronesten,

  Mikael Dellborg,

  Zacharias Mandalenakis,

  Eva Mattson,

  Christina Christersson,

  Louise Robertsson,

  Joanna Hlebowicz-Frisén,

  Linda Ternrud,

  Corina Thomet,

  Javier Ruperti,

  Judith Bouchardy,

  Fanny Brand,

  Tobias Rutz,

  Coralie Blanche,

  Joost P Vanmelle,

  Anna Boer,

  Andrew Constantine,

  Michael A Gatzoulis,

  Konstantinos Dimopoulos,

  Louise Coats,

  Debbie Mcparlin,

  Paul Khairy,

  Anna Proietti,

  Jonathan Windram,

  Deborah Jandura,

  Susan M Jameson,

  Melissa Major,

  Vaikom Subramanian Mahadevan,

  Thomas Nguyen,

  Shabir Sarwary,

  Arwa Saidi,

  Leah Breault,

  Dalia Colon Lopez,

  Ari Cedars,

  Shelby Kutty,

  Jong Ko,

  Anne Marie Valente,

  Sarah Brainard,

  Jeffrey Reichman,

  Ali Zaidi,

  Jamie Jackson,

  Taylor Swenski,

  Steven Neville,

  Adrienne Kovacs,

  Lidija Mcgrath,

  Marshall Taunton,

  Yuli Y Kim,

  Jessica Carducci,

  Saffy Bashey,

  Luis Alday,

  Marina Lousararian,

  Héctor Maisuls,

  Marisa Quinteros,

  Mónica Lucero,

  Lucia Ortiz,

  Fernando Amaral,

  Andre Schmidt,

  Paulo Henrique Manso,

  Rafael Brolio Pavão,

  Fernando Baraona Reyes,

  M Francisca Arancibia,

  Alberto Hernadez Súarez,

  Samuel Menahem,

  Pasangi Madhuka Wijayarathne
• Mageleie til voksne intensivpasienter med akutt lungesviktsyndrom under og etter covid-19-pandemien: Intensivsykepleieres erfaring

  2025:

  - Andreas Boganes Urstad,

  Maren Emilie Granmo,

  Simen Alexander Steindal,

  Brith Andresen
• Frailty and Cognitive Function in Middle-Aged and Older Adults With Congenital Heart Disease

  2024:

  Bo Daelman,

  Liesbet Van Bulck,

  Koen Luyckx,

  Adrienne H. Kovacs,

  Alexander Van De Bruaene,

  Magalie Ladouceur,

  Hsiao-Ling Yang,

  Ju Ryoung Moon,

  André Schmidt,

  Birgitte Lykkeberg,

  Edward Callus,

  Michèle de Hosson,

  Camilla Sandberg,

  Bengt Johansson,

  Joanna Hlebowicz,

  Maria Emília Areias,

  Pascal Amedro,

  Louise Coats,

  Zacharias Mandalenakis,

  Anna Kaneva,

  Philip Moons,

  Eva Goossens,

  Navaneetha Sasikumar,

  Junko Enomoto,

  Yoshiko Mizuno,

  Ming Chern Leong,

  Izzatun Nafsi Binto Sabran,

  Laila Akbar Ladak,

  Babar Hasan,

  Ayat Siddiqui,

  June Huh,

  Jou-Kou Wang,

  Chun-Wei Lu,

  Fatma Demir,

  Tuğba Öden,

  Endale Tefera,

  Julius Mwita,

  Jean-Claude Ambassa,

  Charles Mvondo,

  Marcel Fanka,

  Dejuma Yadeta,

  Mulualem Alemayehu,

  Mohamed Leye,

  Khadija Gueye,

  Harald Gabriel,

  Matthias Svhneider,

  Selina Seeliger,

  Werner Budts,

  Jessica Rassart,

  Michele De Hosson,

  Julie De Backer,

  Mila Markova,

  Miriam Biyai,

  Anissa Boubrit,

  Jean-Benoît Thambo,

  Amandine Ruissel,

  Cecile Jore,

  Hamouda Abassi,

  Sonia Soltani,

  Charlene Bredy,

  George Giannakoulas,

  Diamantis Kosmidis,

  Despina Ntiloudi,

  Silvana Pagliuca,

  Enrico Giuseppe Bertoldo,

  Valentina Fiolo,

  Maryanne Caruana,

  Justine Swain,

  Neil Grech,

  Rachel Xuereb,

  Sarah Craus,

  Maria Bonello,

  Darren Borg,

  Paul Farrugia,

  Joanne Cardona,

  Mette-Elise Estensen,

  Brith Andresen,

  Asbjørg Katrine Eriksen,

  Joana Miranda,

  José Carlos Areias,

  Cristina Cruz,

  Filipe Macedo,

  Filipa Manuela Ribeiro Nunes,

  Ana Maria Barbosa de Bessa,

  Sara Mafalda Espírito Santo,

  Paula Brito,

  Marisa Pereira,

  Sofia Teixeira,

  Brenda Marques,

  Ana Raquel Marques,

  Helena Cronesten,

  Mikael Dellborg,

  Eva Mattson,

  Christina Christersson,

  Louise Robertsson,

  Linda Ternrud,

  Corina Thomet,

  Javier Ruperti,

  Judith Bouchardy,

  Fanny Brand,

  Tobias Rutz,

  Coralie Blanche,

  Joost P. van Melle,

  Anna Boer,

  Andrew Constantine,

  Michael A. Gatzoulis,

  Konstantinos Dimopoulos,

  Debbie McParlin,

  Paul Khairy,

  Anna Proietti,

  Veronique Roy,

  Jonathan Windram,

  Deborah Jandura,

  Susan Jameson,

  Melissa Major,

  Vaikom Subremanian Mahadevan,

  Thomas Nguyen,

  Shabir Sarwary,

  Arwa Saidi,

  Leah Breault,

  Dalia Lopez Colon,

  Ari Cedars,

  Shelby Kutty,

  Jong Ko,

  Anne Marie Valente,

  Sarah Brainard,

  Jeffrey Reichman,

  Ali Zaidi,

  Amrin Amlani,

  Jamie Jackson,

  Taylor Swenski,

  Steven Neville,

  Adrienne Kovacs,

  Lidija McGrath,

  Marshall Taunton,

  Yuli Kim,

  Jessica Carducci,

  Saffy Bashey,

  Luis Alday,

  Marina Lousararian,

  Héctor Maisuls,

  Marisa Quinteros,

  Mónica Lucero,

  Lucia Ortiz,

  Fernando Amaral,

  Andre Schmidt,

  Paulo Henrique Manso,

  Rafael Brolio Pavão,

  Fernando Baraona Reyes,

  M. Francisca Arancibia,

  John Jairo Araujo,

  Alberto Hernadez Súarez,

  Samuel Menahem,

  Pasangi Madhuka Wijayarathne
• Non-invasive ventilation in the care of patients with chronic obstructive pulmonary disease with palliative care needs: a scoping review

  2024:

  Simen Alexander Steindal,

  Kristin Hofsø,

  Hanne Aagaard,

  Kari Mariussen,

  Brith Andresen,

  Vivi Lycke Christensen,

  Kristin Heggdal,

  Marte-Marie Wallander Karlsen,

  Monica Evelyn Kvande,

  Nina M Kynø,

  Anne Kathrine Langerud,

  Mari Oma Ohnstad,

  Kari Sørensen,

  Marie Hamilton Larsen
• Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease

  2022:

  Liesbet Van Bulck,

  Adrienne H. Kovacs,

  Eva Goossens,

  Koen Luyckx,

  Ali Zaidi,

  Jou-Kou Wang,

  Dejuma Yadeta,

  Jonathan Windram,

  Alexander Van De Bruaene,

  Corina Thomet,

  Jean-Benoît Thambo,

  Marshall Taunton,

  Navaneetha Sasikumar,

  Camilla Sandberg,

  Arwa Saidi,

  Tobias Rutz,

  Lucia Ortiz,

  Julius Chacha Mita,

  Ju Ryoung Moon,

  Samuel Menahem,

  Eva Mattsson,

  Zacharias Mandalenakis,

  Vaikom S Mahadevan,

  Birgitte Lykkeberg,

  Mohamed Leye,

  Ming Chern Leong,

  Magalie Ladouceur,

  Laila Akbar Ladak,

  Yuli Kim,

  Paul Khairy,

  Anna Kaneva,

  Bengt Johansson,

  Jamie L. Jackson,

  George Giannakoulas,

  Harald Gabriel,

  Susan M. Fernandes,

  Junko Enomoto,

  Fatma Demir,

  Michele De Hosson,

  Andrew Constantine,

  Louise Coats,

  Christina Christensson,

  Ari Cedars,

  Maryanne Caruana,

  Edward Callus,

  Sarah Brainard,

  Judith Bouchardy,

  Anna Boer,

  Fernando Barona Reyes,

  Maria Emília Areias,

  John Jairo Araujo,

  Brith Andresen,

  Pascal Amedro,

  Jean-Claude Ambassa,

  Fernando Amaral,

  Luis Alday,

  Philip Moons
• Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South Korea

  2022:

  Mariela Acuña Mora,

  Koen Raymaekers,

  Liesbet Van Bulck,

  Eva Goossens,

  Koen Luyckx,

  Adrienne H. Kovacs,

  Brith Andresen,

  Ju Ryoung Moon,

  Alexander Van De Bruaene,

  Jessica Rassart,

  Philip Moons
• Non-invasive ventilation in the palliative care of patients with chronic obstructive pulmonary disease: a scoping review protocol

  2021:

  Simen Alexander Steindal,

  Kristin Hofsø,

  Hanne Aagaard,

  Kari Mariussen,

  Brith Andresen,

  Vivi Lycke Christensen,

  Kristin Heggdal,

  Marte-Marie Wallander Karlsen,

  Monica Evelyn Kvande,

  Nina M Kynø,

  Anne Kathrine Langerud,

  Mari Oma Ohnstad,

  Kari Sørensen,

  Marie Hamilton Larsen
• The COVID-19 pandemic as experienced by adults with congenital heart disease from Belgium, Norway, and South Korea: impact on life domains, patient-reported outcomes, and experiences with care

  2021:

  Phillip Moons,

  Eva Goossens,

  Koen Luyckx,

  Adrienne Kovacs,

  Brith Andresen,

  Ju Ryoung Moon,

  Alexander Van De Bruaene,

  Jessica Rassart,

  Liesbeth Van Bulck
• Quality of life and emotional vulnerability in a national cohort of adolescents living with Fontan circulation

  2021:

  Inger Bygland Grosch,

  Brith Andresen,

  Lien My Diep,

  Trond Haaken Diseth,

  Thomas Möller
• Psychosocial and clinical outcomes of percutaneous versus surgical pulmonary valve implantation

  2018:

  Brith Andresen,

  Gaute Døhlen,

  Lien My Diep,

  Harald L Lindberg,

  Erik Fosse,

  Marit Helen Andersen
• In-hospital cost comparison between percutaneous pulmonary valve implantation and surgery

  2017:

  Brith Andresen,

  Vinod Kumar Mishra,

  Milena Lewandowska,

  Jack Gunnar Andersen,

  Marit Helen Andersen,

  Harald L Lindberg,

  Gaute Døhlen,

  Erik Fosse
• Perceived health after percutaneous pulmonary valve implantation: In-depth interviews of patients and next-of-kin

  2014:

  Brith Andresen,

  Marit Helen Andersen,

  Harald L Lindberg,

  Gaute Døhlen,

  Erik Fosse

Konferansebidrag og faglig presentasjon

• Use of non-invasive ventilation in the palliative care of patients with chronic obstructive pulmonary disease: a scoping review

  2023:

  Simen Alexander Steindal,

  Mari Oma Ohnstad,

  Kristin Heggdal,

  Marte-Marie Wallander Karlsen,

  Hanne Aagaard,

  Kari Sørensen,

  Vivi Lycke Christensen,

  Kristin Hofsø,

  Monica Evelyn Kvande,

  Nina M Kynø,

  Anne Kathrine Langerud,

  Brith Andresen,

  Marie Hamilton Larsen